Saturday, May 24, 2014

Increlex Update

The rumor is true!  Increlex (Jenna's medicine) will be available in the US again on June 2.  BUT, there is a 'however'.

However, it is a limited supply.  One lot of Increlex has been approved.  They are hoping there will not be another 'distribution interruption'. 

I don't how how much Increlex is in 'a lot' and the manufacturer is very tight-lipped on specific details.  Translation:  They are not saying. 

We can't get in to see Jenna's doctor until June 27th so our wait will be a bit longer.  But there does seem to be light at the end of the tunnel.  Finally. 

Hailey's Graduation

We spent a lovely afternoon out in Emmett celebrating great-niece Hailey's high school graduation.  We do not see the Housley side of the family nearly enough.  Was great to get caught up with everyone. 

As you approach Emmett, they have a scenic view pull out that has been greatly improved since the last time we were over to Emmett.  They have a tribute to 9/11, a huge American flag flying and an amazing view.  Of course, I made my family stop so I could take some pictures.

Though it has been two years since they have seen each other, Jenna and her cousin Ryan were fast friends almost immediately.  They played and played, often being shadowed by the youngest cousin Kimberly.  

1 & 2.  Jenna and Ryan
3.  Kimber, Matt (Kimber's dad) and Ryan
4.  The Guest of Honor Hailey
5.  Goofy Ryan
6.  The Three Amigos

We have not seen Kimber since she was 3 months old!  What a stinkin' cutie-patootie!

 We are looking forward to seeing everyone again in June for our 11th Annual Housley Family BBQ!

Tuesday, May 13, 2014

Increlex News

While we have not heard from the manufacturer or our doctor, this is the first news we have had on Jenna's medicine in months.  Direct from the FDA's web site on their drug shortage list. 

I will believe it when I have a vial in my hot little hand, but this looks promising.  However, the alternate manufacturing facility is not yet approved by the FDA, so who knows if the supply will be reliably continuous.